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Your Child's Life is Worth Living


Contact Information
Ph: 412-692-9955
Fax: 412-692-9900

Children's Hospital of Pittsburgh of UPMC
One Children's Hospital Drive
4401 Penn Ave.
Pittsburgh, PA 15224

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Family Support

Children with rare neurodegenerative disorders require specialized care to assure both the medical and social wellbeing of the child.

Dr. Escolar and her team at the Program for the Study of Neurodevelopment in Rare Disorders (NDRD) have provided specialized care for more than 750 patients with neurodegenerative diseases. It is important to understand that these conditions are multi-system disorders, meaning that they affect many of the body’s systems and organs. Our experience, combined with ongoing clinical research, provides the expertise to assess the multi-systemic needs of these children so that we can plan with the families, appropriate disease management, treatments and therapies, and palliative care. We also consult with the child’s local health care providers and educators to assist them in providing care to children with these rare diseases.