Resources for Parents
For more information please click on the links below. Please be aware that the link will "Pop-Up" in a new window so you may have turn off your "Pop-Up Blocker".
Lysosomal Storage Diseases
- Lysosomal Learning
- Hide and Seek Foundation for Lysosomal Disease Research
- National Organization for Rare Disorders (NORD)
- Global Organization for Lysosomal Diseases (GOLD)
- Lysosomal Diseases New Zealand
Mucopolysaccharidosis (MPS)
- National MPS Society
- MPS Australia
- The Society of MPS Diseases
- The Canadian Society of MPS and Related Diseases Inc.
- Irish Society for MPS Diseases
Hurler's-Scheie (MPS I)
Hunter's (MPS II)
SanFilippo (MPS III)
Morquio (MPS IV)
Leukodystrophies
ALD
Krabbe
- The Legacy of Angels Foundation
- Hunter's Hope Foundation
- The Peace, Love & Trevor Foundation
- Story of Judson
- Sweet Baby Grace